Hannah Update

sparks19

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OMG what a great day today.

I go into the NICu to find out her oxygen is lowered to 21% and 1.5 L, she's had some IV's removed, her blood sugar is stablized, They are feeding her my milk and she is digesting it very well, AND I can hold her. That was the best surprise. It was so amazing being able to hold that precious girl again.

all the nurses just love her. She gets feisty and fussy when they are messing with her tubes and stuff but otherwise they say she almost NEVER cries and if you aren't pestering her she never fusses.... she just lays there and looks around and is just content as can be. She got a little sponge bath tonight. LOL she wasn't a big fan of that haha but she made it through.

and I know people will think I am crazy lol but I SWEAR that girl is smiling sometimes. I have seen her "gas" face and this is different. Everyone says babies her age don't smile but it sure looks like smiling :D

What a great day.
 
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WOOHOOO! I am glad she is back to eating your milk and that you got to hold her! Thats wonderful!

Yeah, they say they don't smile, but how do 'they' really know if the baby is smiling or not. Are 'they' mind readers?

I am so happy for all three of you. Hannah will enjoy being cuddled as much as you enjoy cudling her.
 

bubbatd

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How wonderful !!! I'm off to bed with more thanks and prayers . I'll be so glad when she's at your breast again for the both of you !!! It will be a hallmark day for both of you !!!!
 

Puckstop31

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Ya know... It is interesting to see how the definition of what a "good day" is can change so very drastically in a matter of hours.

Early Friday morning, the good day was bringing her home. Today it is that she is on normal O2, only has 2 IV lines, she gets to eat food and we can hold her a little. Now, the best day of my life so far will be the day she comes home.

There is a lesson there, I only wish I could think of how to say it. Probably has something to do with perspective....

:)
 

eddieq

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Perspective is a good way to put it my friend. Just realizing that your baby's health is more important than the things you thought were important.

You guys will do well.
 

ACooper

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Ya know... It is interesting to see how the definition of what a "good day" is can change so very drastically in a matter of hours.
Isn't that the truth?

Think of being on a plane worrying because it is off schedule and now you're going to be late for a meeting.

Then the plane starts going down.........MAJOR priority shift there!

I am so happy to hear that Hannah can be held by you now.........I think that will speed her recovery too, touch and cuddles are so important :)
 

sparks19

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So we are about to head up to the hospital. they took her off the oxygen all together now :D and they are feeding her with the finger tube and she is doing really well.

They did send her for an echo cardiogram because they did detect a slight murmur. the results of that will be back today.... so Nancy.... tell us everything you know about baby heart murmurs :D lol

Hopefully its nothing. but she is still making so much progress everyday. Today I am bringing her "the poky little puppy" to read to her.
 

drmom777

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I'm so glad she's getting food and looking good!

Most heart murmers are benign. They can be caused by so many things. It's really better not to worry unless you know there's something to worry about. Easy for me to say, I know. Due to both personal and pfroffesional experience, I might be a good resource on this one. If you have any questions, or just want more input, let me know.
 

nancy2394

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yes, most heart murmers are benign. Okay, I will try and explain this the best way I can without sounding confusing. The heart is not my favorite thing... so bare with me.

There is a ductus in the heart (a flap) that is open when you are first born. That is how the blood got from one side of the heart to the other and bypass the lungs while in utero because obviously the baby isn't breathing inside the womb.

Once the baby is born that duct usually closes off and makes a seal. That enables the blood to take the normal blood flow pattern and pick up oxygen from the lungs before distributing the oxygenated blood through out the body.

Sometimes that flap doesn't close properly and allows a little leakage to happen. That is when the murmer is heard. There are all kinds of murmers. You might hear them say it sounds like a soft one, it has a click, it sounds like a washing machine.... those are all ways they describe what the murmer sounds like.

There are other ways a murmer occurs besides that ductus not closing. The top two chambers of the heart are referred to as the atriums. There's a little lining between them. There can be an opening somewhere in that lining... and they would call it an atrial septal defect. The same thing can occur in the lower chambers of the heart (ventricles) and they would call it a ventral septal defect.

Those are just a few examples of how a murmer can occur. But like I said... MOST murmers are benign and are nothing to worry about. I'm glad they did an echo.. it will show them how her heart is performing.

I hear babies with murmers all the time. And out of all the ones I've heard there's only been a couple of them we questioned. So, don't worry yourself about this.. wait until they have the echo results and ask lots of questions if you don't understand what they are telling you.
 

Doberluv

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Oh! That is such a relief that she is on the mend. It won't be long now until she comes home to her nest.

I know a few people who have had little heart murmers all their life and they've never had a lick of trouble. My nephew had all of the heart defects at birth that I think one can have. There are a classic number of things that can go wrong (correct me if I'm wrong Drmom) and some babies are born with one or two, some more. He had all of them. And they were to a great extent. He had a new aorta (his leg vein) put in several times, as he grew. He had a huge hole in there, bigger than the Drs at Boston children's hospital had ever seen. There were other defects that I don't recall. Plus, later he was discovered to have only one kidney. It was touch and go. He's now a robust, healthy 23 year old and doing just fine. So, a little heart murmer, little irregularity isn't necessarily anything much to worry over. At least I think I've got that right.

The great thing is that she's getting over the pneumonia. That was scary, wasn't it. You guys have been through a lot. And it is so good to see that you're nearing the end of the tunnel. My thoughts are with you.
 

Doberluv

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Missed your good post Nancy while I was typing. Yes, I believe my nephew had that too, which you described, but not just a little leakage. Everything was a severe situation, not simply a murmer. He had open heart surgery for all these other defects a couple of times and was none the worse for wear....although scary and unpleasant at the time.
 

nancy2394

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She probably had a very faint murmer at birth that was not detected because it was probably really faint and hard to hear. And having the pneumonia may have caused her heart to pump a little harder to compensate for the pneumonia that was giving her some trouble. Maybe that's how they were able to hear the murmer now.

I know that's when my murmer was detected at age 33. I got a bad case of pneumonia and after I recovered from the pneumonia was when I had some cardiac issues. I have a patent ductus arteriosis which is a fancy name for that flap I was telling you that is suppose to close shortly after birth... well, apparently mine never closed all the way and with me gaining weight over the years and then being hit with that awful pneumonia that put me in the hospital for 6 days caused my flap to open a bit more.

But, I am fine... I have chosen to not have surgery to correct it unless I start having fainting spells. I know when my body is shunting (blood without oxygen shoots over to the other side of my heart before picking up oxygen in my lungs) and when the shunting occurs I start to have cyanosis (turn blue) and all I gotta do is sit down for a minute or two and then I'm good to go.

I don't have that many spells.. and i've been known to work like a dog and not even know I'm having a spell because I'm too busy doing what I am doing. The cyanosis doesn't bother me, but it sure seems to bother my co workers...lol.

If she does indeed have a murmer.. just find out what kind and what their plan is to do about it.
 

bubbatd

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Nash had this too . Had to be watched as a lot of babies with DS have heart issues . Luckily , his closed .
 

nancy2394

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Nash had this too . Had to be watched as a lot of babies with DS have heart issues . Luckily , his closed .
Yes, downs syndrome and cardiac issues go hand in hand. I'm not really sure how they link together.. but they tend to have a significant link. I'm glad nash doesn't have issues :D
 

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