Yikes. I'm so sorry.
We're having problems with Cole's meds in trying to keep a constant level. He's on Trileptal (it's one of those damned if you do, damned if you don't medications). Unfortunately for Cole, since his seizures originate from the frontal lobe and are general (there is no single point of origin, but rather a general misfiring all over the frontal lobe), there are currently only 2 medications for him right now. It should be noted that Cole's epilepsy is a result of brain damage from the viral encephalitis when he just turned 2.
I do worry about him as he grows up. If I had a magic wand and could take it all away, I would in a heartbeat.