Nilly's updates on the big battle to Cancer
- Thread starter vanillasugar
- Start date
Way too long since I've updated, sorry guys! I've even been hiding off a bit on Facebook, not making big updates, mostly because I've been hiding out a bit emotionally. I'll try not to!
The latest info is my newest MRI, which is the kind of results that changes very little. They showed some "minor swelling". They classify this as a version of growth, but were quick to stress that swelling is not traditional growth, and they are thinking positively towards my next MRI (3 months from now).
I'm going forward with some other treatment plans, adding a new (for me) drug that isn't traditionally used as a cancer drug but is taken by a LOT of people and shouldn't be a problem to get it prescribed off of traditional use. Only problem is that the studies are in use right now, so it's a bit early until the results are shown. It's not scary at all to take and there are very minimal side effects (most people take with no issues).
The other treatment Matt has been studying strongly might involve a trip of going to New York, because it's not done here. It's about magnetic things I'd have to wear on my head for 23 hours. It's a bit wonky sounding, but has incredibly positive results, and we want to attack this bugger as strongly as we can!
So that's the biggest news. Generally day-to-day we're doing very well! I'm doing the DCA treatment at home by IV twice a week. My lovely neighbour (who is the best nurse that has had easiest luck with my tricky veins), comes over on those nights to set up my IV, and Matt continues from there and takes it out at the end. I do it at night, because I typically fall asleep about 1/2 way through. I'm still on Chemo, but as I've said before my chemo is much easier than most patients have to deal with. Mine are still 5 days of pills (which I take right before be, fall asleep and don't deal with many side effects if any), then 23 days off. I'm also still taking that giant bucket full of supplements, and am following my diet very closely.
That's the most I've got to post at the moment I think. You guys are wonderful for continuing to think of me, and send out all the thoughts/prayers/vibes etc. as I do strongly believe that they do make results! I love you guys! <3
The latest info is my newest MRI, which is the kind of results that changes very little. They showed some "minor swelling". They classify this as a version of growth, but were quick to stress that swelling is not traditional growth, and they are thinking positively towards my next MRI (3 months from now).
I'm going forward with some other treatment plans, adding a new (for me) drug that isn't traditionally used as a cancer drug but is taken by a LOT of people and shouldn't be a problem to get it prescribed off of traditional use. Only problem is that the studies are in use right now, so it's a bit early until the results are shown. It's not scary at all to take and there are very minimal side effects (most people take with no issues).
The other treatment Matt has been studying strongly might involve a trip of going to New York, because it's not done here. It's about magnetic things I'd have to wear on my head for 23 hours. It's a bit wonky sounding, but has incredibly positive results, and we want to attack this bugger as strongly as we can!
So that's the biggest news. Generally day-to-day we're doing very well! I'm doing the DCA treatment at home by IV twice a week. My lovely neighbour (who is the best nurse that has had easiest luck with my tricky veins), comes over on those nights to set up my IV, and Matt continues from there and takes it out at the end. I do it at night, because I typically fall asleep about 1/2 way through. I'm still on Chemo, but as I've said before my chemo is much easier than most patients have to deal with. Mine are still 5 days of pills (which I take right before be, fall asleep and don't deal with many side effects if any), then 23 days off. I'm also still taking that giant bucket full of supplements, and am following my diet very closely.
That's the most I've got to post at the moment I think. You guys are wonderful for continuing to think of me, and send out all the thoughts/prayers/vibes etc. as I do strongly believe that they do make results! I love you guys! <3
I meant to post this over from Facebook since Monday was SO MUCH more positive than Friday. Friday wasn't actually negative, at all, but the difference between Friday and Monday and how various Doctors talk can make such a big difference.
So, directly from my FB:
The doctor we saw in Monday is amazing. It was such a big deal (and difference) to me actually seeing my MRI, and being able to visually see the difference between my last one and this one, and have him explain it from the report instead of just my doctors on Friday just telling me information (and their interpretation!). It made a big difference in my view on the whole thing.
Again, as always, I do love reading from you guys, and I can't say how much I appreciate the support and thoughts. You are all wonderful! (((((((((((((hugs))))))))))))) Especially when I've been slipping towards less positive than I usually am, but I think I'm back on an upswing. I can do it!
So, directly from my FB:
The doctor we saw in Monday is amazing. It was such a big deal (and difference) to me actually seeing my MRI, and being able to visually see the difference between my last one and this one, and have him explain it from the report instead of just my doctors on Friday just telling me information (and their interpretation!). It made a big difference in my view on the whole thing.
Again, as always, I do love reading from you guys, and I can't say how much I appreciate the support and thoughts. You are all wonderful! (((((((((((((hugs))))))))))))) Especially when I've been slipping towards less positive than I usually am, but I think I'm back on an upswing. I can do it!
I saw this on FB, and it made me so happy! You CAN do this!
A coworker's mom is a breast cancer survivor, and her hair actually grew back thicker than ever before after chemo!
I've told you this a million times, but your strength is so inspiring. I think of you daily and I KNOW you will win this fight!
A coworker's mom is a breast cancer survivor, and her hair actually grew back thicker than ever before after chemo!
I've told you this a million times, but your strength is so inspiring. I think of you daily and I KNOW you will win this fight!
Big Cancer Update:
Had an MRI on Tuesday, because it was bumped early to try and figure out what might be causing numbness on my hands and feet. Today we found out is that everything is stable. The tumor shows some shrinking since last time! YAY!! I am still showing more swelling like last time, but they'd said last time this can be a positive sign and good thing. These are our most positive results we've had so far!
The numbness however continues as a problem. I have been feeling this since almost a month, gets worse through the evening and into bed. The Doctors said that this can be caused by 3 options: The chemo medication, steroids, or the DCA treatment I have been on. Also it take years to heal/stop. So, that's annoying.
Keeping positive, my hair is growing back like crazy! Steroids are of coursing causing a LOT of hair, but that's not something waxing can't cure!
Thoughts, prayers, vibes and all are greatly appreciated from everyone, as it has clearly been working!
Love to everyone!!
Had an MRI on Tuesday, because it was bumped early to try and figure out what might be causing numbness on my hands and feet. Today we found out is that everything is stable. The tumor shows some shrinking since last time! YAY!! I am still showing more swelling like last time, but they'd said last time this can be a positive sign and good thing. These are our most positive results we've had so far!
The numbness however continues as a problem. I have been feeling this since almost a month, gets worse through the evening and into bed. The Doctors said that this can be caused by 3 options: The chemo medication, steroids, or the DCA treatment I have been on. Also it take years to heal/stop. So, that's annoying.
Keeping positive, my hair is growing back like crazy! Steroids are of coursing causing a LOT of hair, but that's not something waxing can't cure!
Thoughts, prayers, vibes and all are greatly appreciated from everyone, as it has clearly been working!
Love to everyone!!
