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  #1381  
Old 04-05-2013, 06:00 PM
-bogart- -bogart- is offline
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I didn't go to prenatal classes with my second pregnancy. I went to one with my first and never went again. I was sent to the young mothers one and it was awful. I was the only preggo who didn't leave to go chain smoke on the break. They told us ramen noodles were not a proper source of nutrition (oh rly? never would have guessed!)

So I know lots of you ladies are pregnant/have newborns but I was coming in here to say Briggs is being assessed for autism. He went for the consultation at the autism clinic and the two doctors who interacted with him said yes, he needs the full blown assessment done. That happens on the 26th.

Part of me is happy that its getting on its way. Part of me is really not handling it too well. I know without a doubt my son is autistic. The older he is getting the more obvious it is. I am very matter of fact and am not the type to pull the wool over my eyes. It is still so hard to deal with though. I guess there is still that hope that he will just magically not have these obstacles ahead of him. At 2.5 he still doesn't even respond to his name. He self harms out of confusion and its just... I was hoping I was doing something wrong and it wasn't him, ya know?

Ow Paige , My heart breaks for you . Coming to terms with having a diffrent kid is hard. I know how I felt with Caleb and can sympathize with you.
If you ever need to rage , just hollar. It is not Fair and will never be fair , but I am positive you will teach him how to cope and have a good life. Who cares about normal anyway?
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  #1382  
Old 04-05-2013, 06:11 PM
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Paige Paige is offline
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It's not the fact he isn't "normal" that breaks my heart. It's how confused he is in day to day life. He doesn't know his name and that is incredibly challenging. He has learned how to talk a bit in the last six months. He can count to ten, but all that has started is an obsession over numbers and when you try to redirect him he beats his face into hard surfaces.

A lot of the time he is really happy. I love him just the way he is and if he never had to leave a "safe" environment it would be fine but he has such a hard time coping with day to day things. I don't even know how to explain it but he almost looks fearful when he just doesn't get it.

Its also hard because I am a single mother with very little help at the best of times and no help 99% of the time. I get so frustrated with other people who hardly know him telling me he isn't going through anything, I just need to do y or z and he will get better. He has seen numerous professionals and they all say its pointing towards the same thing. I think thats a really huge indication something is up.

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  #1383  
Old 04-05-2013, 06:28 PM
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It's not the fact he isn't "normal" that breaks my heart. It's how confused he is in day to day life. He doesn't know his name and that is incredibly challenging. He has learned how to talk a bit in the last six months. He can count to ten, but all that has started is an obsession over numbers and when you try to redirect him he beats his face into hard surfaces.

A lot of the time he is really happy. I love him just the way he is and if he never had to leave a "safe" environment it would be fine but he has such a hard time coping with day to day things. I don't even know how to explain it but he almost looks fearful when he just doesn't get it.

Its also hard because I am a single mother with very little help at the best of times and no help 99% of the time. I get so frustrated with other people who hardly know him telling me he isn't going through anything, I just need to do y or z and he will get better. He has seen numerous professionals and they all say its pointing towards the same thing. I think thats a really huge indication something is up.

that came out wrong , not as in you are sad he is not normal , just the challenges he will face as he grows is what i meant.
Caleb while is not self destructive , will never live on his own or be able to care for himself. i can empathize with the worry and heart break.
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  #1384  
Old 04-05-2013, 06:40 PM
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That must have been hard to deal with. How old is Caleb and when did you guys find that out ?
I am trying my best to cope with it and often i feel fine. Days like today though I am not doing so well.
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  #1385  
Old 04-05-2013, 06:50 PM
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That must have been hard to deal with. How old is Caleb and when did you guys find that out ?
I am trying my best to cope with it and often i feel fine. Days like today though I am not doing so well.
Caleb was a normal healthy child hitting all his development milestone right on target , walk talk and count letters the whole shebang. The june after he turned 3 he was bitten by a mosquito and contracted the West Nile Virus. He was eating pickles we had just brought in from the store and started having a seizure out of no where. six months later and 6 days out of the hospital during that whole time we have a diagnosis of Idiopathic Pediatric Epilepsy , in other words he has seizures and they cant pin point an exact reason. He is longest has been 4.5 hours long and they do not stop on there own. He has a seizure and goes to the picu at least overnight. Of course i blamed all the delays he was now having on the heavy meds he was taking (up to 15 pills a day at one point). When he started school was when It hit me. He was not normal anymore and it was not completly the meds. He now is 13 and in 6 grade but only doing 1st grade work. I often feel like my son died that fatefull day and the aliens left me with a doppleganger. All the hopes and dreams I had are gone , now i just dream of a month seizure free.

my advise is grief , get it out , only allow yourself to bottle it up for a bit. you have to let it out of it will win and you will break. venting is good , screaming is also . hugs
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  #1386  
Old 04-05-2013, 07:57 PM
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My goodness I can't even imagine going through that. Briggs has had siezurs before. They are so scary.
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  #1387  
Old 04-06-2013, 09:50 AM
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AllisonPitbullLvr AllisonPitbullLvr is offline
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I'm so sorry for both of you.
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  #1388  
Old 04-06-2013, 10:06 AM
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Paige, I'm so, so sorry you're going through that, I can't imagine what it must be like to watch your child get so distressed, especially at such a young age. Is your boyfriend at least supportive? Or other family?

Try to remember, that while maybe Briggs will never be neurologically "normal", there is a very good chance he will (albeit it with hardships most of us won't), function just fine in this world. Especially since you're getting him help now...there are SO many advances in autism, both towards a "cure" and finding out how to help those with autism cope. I have friends who have autism spectrum disorders who's parents were told they'd never speak...and now they hold "normal" jobs, have graduated college, and in most cases an acquaintance would never even know about their disorders. Look at some of our chazzers who have autism...they have plenty of hardships, more than anyone without autism will ever know, but they also have happy, relatively healthy, "normal" lives.

It's different for everyone, and you won't know what the future holds until it comes, but my point is that: an autism spectrum diagnoses doesn't mean what it meant 50, 20, or even 10 years ago. And with the advances in both neurology and psychology that have been made during those time periods, imagine the strides in science and medicine that will be made during our children's lives. As long as Briggs has a Mama who's willing to fight for him and get him the help he needs, he'll be ready to get through anything. I can't imagine how hard it is to have a toddler that self harms in frustration, but I'm confident that with the right guidance you will be able to stop that behavior. I'll keep you both in my thoughts and hope that happens as soon as possible.
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  #1389  
Old 04-06-2013, 10:57 AM
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I'm so sorry for both of you.
Thanks for that , What can you do really , he is my child and I would die for him , so living for him is not a problem.


I really try not to let it get me down because the one thing I learned the very first time he was in the PICU when he was 3 , No matter how bad it seems to me and how overwhelmed I get , there are other little babies and families who are much worse. I was rushed out of PICU when the baby next to him DIED. He was early and had problems. I saw his dads and moms heartache and held them while they cried. So yeah the seizures are bad and could kill him if not controlled , but
I thank god everyday he at least will come home with me (knock on wood) and is a great sunshiney smiliey kid.
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  #1390  
Old 04-06-2013, 05:47 PM
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Thankyou for the kind words. Thats a very good point about how far we have come and how much farther we will in his lifetime.

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Originally Posted by -bogart- View Post
Thanks for that , What can you do really , he is my child and I would die for him , so living for him is not a problem.


I really try not to let it get me down because the one thing I learned the very first time he was in the PICU when he was 3 , No matter how bad it seems to me and how overwhelmed I get , there are other little babies and families who are much worse. I was rushed out of PICU when the baby next to him DIED. He was early and had problems. I saw his dads and moms heartache and held them while they cried. So yeah the seizures are bad and could kill him if not controlled , but
I thank god everyday he at least will come home with me (knock on wood) and is a great sunshiney smiliey kid.
I feel the same way about Briggs. I am also really glad he is my child. I love him for who he is, not despite it.
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