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  #11  
Old 02-13-2012, 10:32 AM
JessLough JessLough is offline
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Originally Posted by ravennr View Post
For me, I clench mainly because of anxiety. For that I was given valium since the mouth guard didn't work and it was awkward to fit into my mouth. My jaw is completely off its alignment and will need to be broken (but I'm afraid to have the surgery to do it, like, scared to death of it).

TMJD is the worst
Yah I was supposed to have surgery to have my jaw broken a few years ago.. But I refuse to have my mouth wired shut for 3/4 months

ETA: I have a friend who went through with the surgery, and she said the pain really wasn't that bad. It was just the only eating liquids and baby food sucked. As far as scars, they only made 2 tiny incisions and they were rather hidden so t wasn't obvious
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  #12  
Old 02-13-2012, 10:35 AM
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Yah I was supposed to have surgery to have my jaw broken a few years ago.. But I refuse to have my mouth wired shut for 3/4 months
It's scary stuff! I was meant to have it done at 15, but I refused because they said there was a possibility of my face going numb forever on one side. I just couldn't cope with that, but at this point in my life the pain is so bad that I don't really know what else to do.

As soon as I can get health coverage here in Canada, I want to have a specialist look at it again. Something needs to be done, it's not right to have to live in pain like this.
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  #13  
Old 02-13-2012, 10:40 AM
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Omg the thought of having my jaw wired shut for 3-4 months sounds unbearable.

I had braces when I was younger and have a permanent retainer on the bottom. My top jaw is not aligned correctly again and I definitely have an overbite so my jaw must have shifted after I had my braces taken off. I know this is super bad, but I haven't been to a dentist since I was 16. I'm going on 26 this year.
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  #14  
Old 02-13-2012, 12:56 PM
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I have TMJD and it sucks. I was diagnosed when I was about fourteen/fifteen - I was at the State Fair, and my jaw just locked up. I remember being so mad that I couldn't eat anything lol.

It took about two years of physical therapy (I was not a good surgery candidate) before I got the full range of motion back. During that time, I had about an inch to two inches of motion, I couldn't chew anything hard, and I was experiencing lock-ups about twice a week.

Just before I turned eighteen, I had to have surgery for my four impacted wisdom teeth, and it went back to square one - although it only took about six months of physical therapy the second time around.
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  #15  
Old 02-13-2012, 01:10 PM
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Originally Posted by JustaLilBitaLuck View Post
I have TMJD and it sucks. I was diagnosed when I was about fourteen/fifteen - I was at the State Fair, and my jaw just locked up. I remember being so mad that I couldn't eat anything lol.

It took about two years of physical therapy (I was not a good surgery candidate) before I got the full range of motion back. During that time, I had about an inch to two inches of motion, I couldn't chew anything hard, and I was experiencing lock-ups about twice a week.

Just before I turned eighteen, I had to have surgery for my four impacted wisdom teeth, and it went back to square one - although it only took about six months of physical therapy the second time around.
That sounds so awful. I'm sorry.

I just got all my dental insurance straightened out. It looks like it's going to probably cost me about 300 out of pocket for copayments and sedation. The rest is covered by insurance. I was expecting it was going to be more than that. Now I just need to set up an appointment with a regular dentist to do a panoramic xray and they have to refer me to an oral surgeon to get the tooth removed. I'm hoping this will help clear up all the tension in my head and the jaw clenching issue. If not then from there I will ask about the possibility of if being TMJD.... My sister apparently has that.
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  #16  
Old 02-13-2012, 03:13 PM
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(((hugs)))

I recommend Gentle Dental Care in Fairfax if you haven't already chosen a dentist. The people there are very nice. My sister is a hygienist there. The dentist I saw, Dr. Rico, is really nice and he puts you at ease with really corny jokes. Its really hard to be afraid when the man is saying things like "It was Luke Skywalker who said 'may the floss be with you.'" lol
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  #17  
Old 02-13-2012, 03:52 PM
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Originally Posted by skittledoo View Post
That sounds so awful. I'm sorry.

I just got all my dental insurance straightened out. It looks like it's going to probably cost me about 300 out of pocket for copayments and sedation. The rest is covered by insurance. I was expecting it was going to be more than that. Now I just need to set up an appointment with a regular dentist to do a panoramic xray and they have to refer me to an oral surgeon to get the tooth removed. I'm hoping this will help clear up all the tension in my head and the jaw clenching issue. If not then from there I will ask about the possibility of if being TMJD.... My sister apparently has that.
TMJD absolutely sucks as far as insurance goes. In my case, my dental insurance was of the opinion that it was a medical issue, but my medical insurance was of the opinion that it was a dental issue - both refused to cover it.
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  #18  
Old 02-13-2012, 03:55 PM
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Originally Posted by JustaLilBitaLuck View Post
TMJD absolutely sucks as far as insurance goes. In my case, my dental insurance was of the opinion that it was a medical issue, but my medical insurance was of the opinion that it was a dental issue - both refused to cover it.
That's terrible!

I at least was able to have it covered under medical, so my doctor treated me for the pain and daily lock-ups. I had mine lock up every single day for almost a year and a half. It finally got to the point where I could push the bone near the joint, and unlock it with enough pressure (it'd lock up again after I shut my mouth) and then it finally seemed to go away. I still get the horrible clicking, I think it just moved over even further to a point where it can't lock on its own again. The pain just got worse though.

The TMJ Hope website really helped me.
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  #19  
Old 02-14-2012, 11:10 PM
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skittle - definitely get the wisdom teeth out - and then deal with the clenching. They may be directly related. Muscle tightness (clenching) can often occur because of pain as the body's attempt to protect itself...so if you get rid of the underlying pain, the muscle thing may work itself out.

For everyone with TMJ...do NOT forget that it is a joint in your body & just like every other joint...it is BEST treated by a physical therapist. You definitely want to try to see a PT that specializes in it though. Oftentimes, it is closely linked to neck issues.

I can't tell you how many stories I hear from fellow PTs that see people who have been suffering from YEARS...some that have had multiple surgeries, etc...and we are able to treat them out in a few sessions & get them pain free.

One memorable patient...3 surgeries on one TMJ...turns out...the OTHER TMJ was not working correctly, so the painful side was basically doing the job of both...hence all the pain. We treated the other side...and it greatly eased her other pain. Ridiculous how many different surgeons/dentists/etc missed this. Point is...the TMJ is made up of bones & muscles & a little disc. PT's are the absolute expert when it comes to that stuff .
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  #20  
Old 02-15-2012, 12:22 AM
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I definitely second the physical therapist recommendation. I first brought the problem up to my dentist, who told me that I was grinding and just needed a mouthguard. Mind you, by this point my jaw would not open wide enough to put a mouthguard in. I then went to the dentist my mom was seeing and he diagnosed it as TMJD, and referred me to a surgeon specializing in TMJD, who then referred me to a physical therapist. The physical therapy, combined with chiropractic and acupuncture, is what really helped bring my range of motion back and bring the pain now. I still have flare-ups, and I still have pain - but its now infrequent.
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